I love the internet. I know that it has its down side, but ever since I was told that Jonas is more than likely on the autism spectrum I have not stopped researching every thing I can. I feel like the more I learn the better off Jonas will be and I feel so blessed that I have an amazing resource sitting right in my living room or any room for that matter (I have a laptop). Anyway in my pursuit to learn about what I can do to help Jonas I came across this…thing, I don’t know what you would call it but it made me cry and I had to share.
WELCOME TO HOLLAND
c1987 by Emily Perl Kingsley. All rights reserved
I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……
When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”
“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”
But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.
The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”
And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss.
But… if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.
by
Emily Perl Kingsley.
I don’t feel like this all the time because for the most part Jonas is doing really well. We just started a new therapy called PECS which is supposed to help him communicate through pictures and he is doing amazing!! But, sometimes this is exactly how I feel and I just love that I can go online and find words to describe something I felt that I couldn’t put words to on my own.